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Posts Tagged ‘Mental Retardation’

Just as I was thinking that Becoming Alice was slowly making its way into oblivion, I received an email from an unknown sender. I am always hesitant to open emails from parties that I don’t know. I learned that early on when many of them were strictly advertisements and come-ons for products I had no interest in. Others were sexual. Give me a break! So, naturally I either delete those emails or report them as scam. Even then I don’t think AOL does anything to keep them from coming.

Back to the latest email I received from an unknown sender. I don’t know why but for some reason I opened it and it was adressed to me by name. It was from a woman who bought Becoming Alice from me at the Los Aangeles Times Book Festival a couple of years ago. She wondered if I remembered her. She was the lady who had with her a handicapped son in a wheelchair. Of course, I did not remember her. I talked to a zillion people that day. She stated that the reason she emailed me was that she was moved by my account of the old butcher in my story who was forced to sell his store to my parents in order to stay home and help his wife care for their mentally retarded son.

She wanted to know more about why he made that decision and not any other kind, such as institutionalization. She wondered what responsibility society has in caring for such handicapped people. She wondered if she should listen to what her friends were advising her to do. And she wondered how his situation finally turned out.

I could not answer that question but I was able to share with her my own experience with couples who have had to deal with this problem, each making a different decision for themselves. My husband had a severely retarded brother who was cared for by their parents until his mother was ninety-two, at which time she herself needed elder care. Another couple gave birth to a Down’s syndrome baby and placed him directly from the hospital into an institution. Each of them made different decisions for themselves which they thought were right. My advice to her was to do whatever she thought was right for her.

In the end it is she who will have to be responsible for that decision, not society or her friends. Her last email to me was to thank me for my advice; she said it made her feel better about her decision to keep her son at home.

I never expected Becoming Alice to be useful to someone in this particular way, but I couldn’t have been more pleased.

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